Routine data (ie, data collected for clinical or administrative purposes) have long been used to describe and quantify end-of-life experiences, including inequitable outcomes. For example, studies ...

Introduction The decision to withdraw mechanical ventilatory support at the request of a patient with motor neurone disease (MND) is complex and unique. The Association for Palliative Medicine of ...

Objectives Identify the indication, route of administration and dose for phenobarbital continuous subcutaneous infusion (CSCI) in palliative sedation therapy (PST). Assess the dosing and continuation ...

Objectives To identify end-of-life preferences of people with advanced chronic obstructive pulmonary disease (COPD) and to compare characteristics between those who wish to discuss the end-of-life and ...

Objective Cancer remains one of the leading causes of death worldwide. Despite advancements in anticancer therapy, some patients decide against treatment. Our study focused on characterising therapy ...

Extracorporeal membrane oxygenation support: palliative care integration – patient experience and quality of life ...

The multidisciplinary care of people with motor neuron disease (MND), also known as amyotrophic lateral sclerosis (ALS), is now widely established and recommended in several guidelines.1 2 However, ...

Background Parkinson’s disease (PD) is a significant cause of mortality but little is known about the place of death for patients with PD in the USA, a key metric of end-of-life care. Methodology A ...

Objectives Assisted dying has been legally available in Oregon in the USA for 25 years, since when official reports have been published each year detailing the number of people who have used this ...

Introduction The National Audit of Care at the End of Life reports the quality of care provided to people dying in hospital. This paper reports the bereavement (quality) survey data about the families ...

Background Delirium is a debilitating disorder with high prevalence near the end of life, impacting quality of life of patients and their relatives. Timely recognition of delirium can lead to ...

Context Investigators in palliative care rely heavily on routinely collected data, which carry risk of unobserved confounding and selection bias. ‘Natural experiments’ offer opportunities to generate ...