Get support. Talk with other people who know what you're going through. Ask your doctor about ways to get connected, such as a PNH support group that meets locally or online. If you’re a woman ...

If you have PNH, you will find that your condition requires ... The Aplastic Anemia and MDS International Foundation offers virtual monthly support groups. You can get more information at their ...

Paroxysmal Nocturnal Hemoglobinuria, also sometimes referred to as Marchiafava-Micheli syndrome, is rare, occurring in only 1-2 persons per million. PNH may go undiagnosed because some symptoms of ...

“The ALPHA trial investigated the safety and efficacy of danicopan in patients with PNH and EVH, and demonstrates this is a suitable option to support disease control and may help to improve patients’ ...